A charity football match will be held on Saturday April 13 in Thessaloniki for 25-year-old Batten disease sufferer Thodoris Ntoumas, first diagnosed with the rare degenerative disease at the age of six, now a third-year student at the Agricultural University of Athens, having defied all medical expectations, ANA reports.
Batten disease is a rare neurological, degenerative disease, which first affects the patient’s vision ahead of motor restrictions and epileptic seizures. For example, according to the National Institute of Neurological Disorders and Stroke, it affects an estimated 2 to 4 out of every 100,000 children in the US. The average life expectancy of a Batten patient is 20 years, a scientific fact which has prompted doctors to regard the case of Thodoris Ntoumas a so-called medical miracle.
The proceeds from the football match in Thessaloniki will help bring Thodoris to a US-university affiliated medical center, where he can join an experimental clinical gene therapy study that could help him and set a medical precedent against the debilitating disease.
Info: “Theodore’s Miracle” at Kaftantzoglio Stadium, Thessaloniki, Saturday (April 13), 17:00
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